ABOUT THE PARRY ROMBERG FOUNDATION

The Parry Romberg Foundation was established in 2006 by Jay and Donna Sperry and their daughter, Kelley, who was diagnosed with Parry Romberg Syndrome in 2000. Since Kelley's diagnosis, the Sperrys have worked to raise awareness of the disorder and support for research.

A gift from Kelley's grandfather made possible the formation of a nonprofit organization. This Web site is dedicated to his memory.