MISSION

The Parry Romberg Foundation is a nonprofit organization whose mission is to develop and provide resources for research, advocacy, education, and support for persons with Parry Romberg Syndrome, their families, doctors, and communities.

The Foundation will achieve this mission by raising financial support for promising research and by bringing awareness of Parry Romberg Syndrome to the media, policy makers, and the medical community. Funding for these activities will come from private and public grants and corporate and individual donors.