WHAT IS PARRY ROMBERG SYNDROME?

Also known as progressive hemifacial atrophy, Parry Romberg Syndrome is characterized by the slow, progressive degeneration of the soft tissue in half of the face. Some individuals with the disorder may also experience changes to skin and hair pigmentation, visual abnormalities, seizures, and episodes of severe facial pain.

Symptoms usually appear during the first decade or early in the second decade of life, with the majority of affected individuals experiencing symptoms before age 20. In rare cases, symptoms are apparent at birth. Initial facial changes typically occur in the area above the upper jaw or between the nose and upper lip and progress to the mouth, brow, eye area, ears, and/or neck. Tissue wasting can occur on either half of the face and in some rare cases may occur on both sides.

The range and severity of symptoms varies from case to case. This description is not meant to substitute for a professional diagnosis. To find a medical professional experienced in diagnosing Parry Romberg Syndrome, please visit our Physicians Directory.


 
 

 

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